Consumer Generated Health Data: Help or Hinderance?

General 1 March 2019

Dr Uma Srinivasan, Senior Research Scientist at the Digital Health CRC, was part of a panel of speakers debating the value of consumer generated data at the recent ANDHealth Summit in Melbourne. 

 This annual event series is designed to bring together real challenges faced by companies seeking to grow into global enterprises with leading local and international experts who can point to a track record of success.

"ANDHealth is dedicated to improving the knowledge, skills and ecosystem required to enable the creation of a vibrant and growing digital health industry within Australia.” says ANDHealth CEO Bronwyn Le Grice.

 ANDHealth, a DHCRC participant, looks beyond the traditional realms of Health IT and EMR technologies to emerging trends such as digital therapeutics and AI driven diagnostics, where both clinical and commercial evidence can be brought to bear to change clinical practice for the benefit of patients.

 We asked Dr Srinivasan to share her thoughts about what she learned from the event and the panel discussion she was involved with:

 The ANDHealth Summit served as a platform where health technology innovators, clinical experts, pharma, researchers and commercialisation experts came together to discuss, explore and share their vision of how digital health technologies are changing the entire health sector.

 The keynote speaker, Lisa Suennen, a global leader in digital health investment, presented her insights on business success in digital health. Her novel approach of using insightful one-liners from the movie, The Princess Bride, to illustrate successful entrepreneurship in digital health, truly set the stage for lateral thinking among the participants.

 The day itself was structured around several panel discussions which were interactive and offered a way to explore diverse thoughts from the panellists and the participants.

 I was one of the speakers in the panel session on Consumer Generated Health Data: Help or Hindrance. We explored issues around usefulness, value and the risk of generating actionable insights from data generated by consumer apps and devices which have not met clinical standards of accuracy and reliability. The panel was healthily diverse in its thoughts and resulted in divergent viewpoints being presented throughout the session. 

My take was, given that about 42% of mobile health apps today connect to sensors and wearable APIs; and almost 50% of mHealth app publishers use API aggregation services, consumer generated data from IO(m)T (Internet of Medical Things) is here to stay. Therefore, instead of ignoring the new data generated by consumer apps, we need to position it in the larger context of the overall healthcare landscape; analyse it intelligently; and use it wisely so consumers and physicians share the new data insights to travel the healthcare road with cautious optimism. During the session, I also presented a framework to situate data from Io(m)T in the context of a regulated environment that can support both lifestyle and clinical environments.

I am grateful to ANDHealth for providing me with the opportunity to be part of the panel and the event itself.

Dr Uma Srinivasan





Never miss an update?

Sign up for the DHCRC newsletter.

Sign up